Philly day #2

I cannot even begin to tell you the love and gratitude that I have for today! My heart is full!!  It was an amazing Day!!

We started off going to our 10am casting appointment. When we got there I got to meet the infamous Bash and his momma! When I was pregnant with Dylann I saw two articles in the Internet about boys with AMC who had amazing results from craniosacral therapy; one was bash. They live in FL and there are lots of articles and blogs about him and their work at the Upledger Institute. I recognized him immediately. He's 5 now. We spent a half hour or so playing with him. It was great!

Then we got called for our appointment within an hour of our time! That's crazy. We are used to waiting 2-4 hours past our scheduled appointment so we plan to have lunch and play with the toys. Today we were in and out in 2 hours!

During her casting she didn't even cry. She cried when we pulled into the parking lot and said bye bye!! After they took the casts off with some tears she just laid there and watched Mickey. It was so much easier than usual! 

I asked more hip questions.  The surgery will take about 4 hours on Wednesday.  He will also do another heel cord release but said her feet look good! He is also going to fit her for her KAFOs while in the operating room so they can make the braces before we come back. But, the best news of all... He thinks she will only need 6 weeks in the SPICA CAST! When we come back at 6 weeks he said he plans to put her in a brace and not recast . There is a chance this could change but he said that's uncommon. It's the best news I have heard in a long time! 6 weeks sounds so much more manageable then 12. My entire body relaxed!

After we left our great appointment we got a call telling us we got into the Ronald McDonald house 1 mile from Shriners!!  We quick ran and packed up our stuff at the hotel, went and got a few groceries, then made our way there. This place is amazing! Our room is twice the size of the one we stayed in last night. Dylann loves it! There's a huge play area that we spent much of the afternoon in. Then at 6 we went down for dinner and they had set up a birthday party for Dylann! A princess table, hats, a birthday cake, and a present. Everyone sung to her! We met these people 2 hours before and they pulled together a birthday party for dinner. My heart is full! Absolutely amazing day.