Dylann 5 days old

Dylann 5 days old

Wednesday, December 9, 2015

Almost halfway through the spica cast

Today's the three week mark since surgery and cast day. We've sort of settled into a new routine. We don't leave the house much which I think is okay. She's pretty close to eating normally. We were spoiled last week with grandma Paradeis staying with us but have started back to our routine for the next few months. A friend from church started Monday as her PCA while she's in the cast. Dylann loves her and it's been going great! I will be working from home while she's here for now and be in the office 2-3 days a week probably through January. It's a fair bit of juggling but when I think we're almost halfway done, it doesn't seem like that's even possible. Time has gone by fairly fast.

The areas that could use some improvement are her sleep and keeping her cast dry.  Some nights she will sleep 11 straight hours. Others she will only sleep 3-4 total.  Most of the time she's up 2-3 times a night for about 20 minutes.  In some ways it feels like a newborn again.  The diapering is a nightmare. We've adjusted our approach at least 10 times and still can't keep it dry for an entire day. We've more just changed our expectations and added time to blow dry her each night.

We leave 1/9 to go back to philly and return 1/12. Cast removal is 1/11. She will get an X-ray this Friday to make sure it continues to look good. After cast comes off she will go into a brace for another month keeping her in a similar position. Then we go back in February hopefully for the final foot braces and clearance to start weight bearing.

As usual, her mood is great and she's as cute as can be!