Dylann 5 days old

Dylann 5 days old

Wednesday, April 27, 2016

April Updates

Just wanted to send a quick update as its been awhile. Not too much has changed since we got back from Philly in March. We have our Gait trainer at home for the last week.  Dylann has been ok with it. She likes to cheat and use it like a skateboard so we've been working on alternating legs. She also started biking last week so I just bought a trike so Gilettes can adapt the peddles to have her strapped in. Hopefully this will strengthen her legs. We go back to Philly 6/9-6/13 so momma gets to spend her birthday there this time!

Otherwise things have been pretty much uneventful and status quo. Other then today which for some reason was a hard day. It's been awhile since I've had one as she's been so strong and resilient. I don't if it was from seeing her cry when using her walker with frustration and pain looking like she'd had enough of all of this. I don't know if it's seeing all these other AMC kiddos walking on FB. I don't know if it's cause each daycare drop off I see all the kids running around and leave her sitting by herself playing. I don't know if it's because I think she's starting to realize she has different needs then her friends.  I dont know if it's because the first time I saw my daughter today was at 8pm. Or because if I see my kids more and my husband and I don't continue to work a ton we couldnt afford to get her the help she's getting.  I don't know if it's because my son has started to act out more in what I think is a response to all of this. I just know today was a hard day.