Dylann 5 days old

Dylann 5 days old

Thursday, July 6, 2017

A date is set

We got the call today. Dylanns next surgery is set up.

It's weird because I've been waiting and wanting it set up but after the call today I'm not feeling relieved, I'm actually feeling sad and worried again.  It's going to be a long Fall/Winter for Miss Dylann.

The plan is this. We go to Philly for two sets of clubfeet casts 9/29 and 10/2. Then we come home and work with MPLS Shriners for a month doing another 4 casts here. Then back to Philly for casts 10/27 and 10/30 with surgery 11/1 so we will be there 1.5 weeks. These will be trips 9 and 10 in the last two years. So this year Halloween at the Ronald McDonald house but we should be back home for her birthday!

Dylanns surgery will be all day. She's having hardware removed from her left femur that remains from her last surgery. She is having a left pelvic osteotomy to help her hip stay in place ongoing by rounding out the socket. She's having 8 plates in her right knee to help her naturally straighten it while she grows over the next year, and she's having two heel tenotomies where they sever her heel cords to help with her clubfeet regression. I'm not totally clear on how long she'll remain then in her Petrie cast but likely 6-8 weeks. She'll look like below.


So we will be driving home and need to figure out how to get her around with her hips that wide. I'm hoping to add something to her wheelchair so she can still keep some independence and she can go to her preschool in that if she's up to it after recovering.

What I've learned about Dylann is she's so resilient; it's the rest of us I'm worried about 😜.  Hoping this is the last major deal for her and that her recovery is that much faster then two years ago when we did this whole thing.