Day 8 philly

Things are going much better today. Dylann was very agitated last night and ended up pulling out her IVs. She was super itchy and wouldn't take meds. We did manage to sleep from 1-4 or so. This morning they switched her from the Morphine which I was concerned was the problem. She doesn't do well with the narcotic/opiate family and acts really crazy on it. She was hitting us and throwing her meds. Something wasn't normal. Our NP put her on other options and sense then things are calm. She's a little agitated but mostly from being tired and having a hard time finding a good position. Her pain seems controlled though. 

At 10 we got to visit Temple university hospital to get a CT scan to make sure her hips were holding good. Things were happening over there! Plus we got to get out for awhile.

Dylann got fitted for her car seat. There were concerns that she wouldn't be able to sit in it because of how straight her back is in it. If it didn't work she would have had to lay on the back seat on her back and be harnessed to the seat. That didn't make me real thrilled but luckily she fit it and can also take it on the plane!!!

Otherwise she's been sleeping most of the day. She won't eat and isn't drinking a ton. We are trying to avoid getting another IV just to push fluids. Hoping tomorrow she'll be closer to herself.

Dr van Bosse came by at 7 on this way out for the day. He showed us how to diaper her and said her CT scan looked great. He said her hips are very stable and doesn't have to remove it under anesthesia which he often does for AMC kids in case they have unstability they need to work on or potentially recast. So that's good! He did decide just to be safe though she's staying in it for 8 weeks. So we're still way better then the 12 I initially thought but a bit longer then my initial 42 day count down! So we will be coming back mid January to get cast off, get a hip brace, and get her AFOs. Then we will come back a month or so after that to get her tall braces and do some therapy to try to get her walking!!!! :) Then my hope is we won't have to come again for like 9-12 months. Hoping for a good sleep night!