Dylann's craniosacral therapy is every other week and is going super well. Dylann's getting a lot stronger and is almost sitting by herself despite what her neurologist said about her core strength being behind. We've been working a lot on her shoulder strength and trying to have her start to put weight on her knees.
We got our approval letter back a week or so ago from insurance to cover her genetic testing so she went and gave blood Monday. I think it will be a 2 to 3 month wait now.
Dylann saw the hand/arm doctor at gilettes yesterday. They wanted to do an assessment to see if she needed any interventions on her arms. Luckily it was the first good news appointment. The MD said they are perfect! They are the right measurements and tone and full range of motion. She still has some tightness/weakness in her left shoulder but therapy is working on that. The doctor said Dylann was far above average for kids with arthrogryposis in her upper extremities! I can stop worrying now about the nurse who told me her arms were too short in the hospital! :)
The next appointment with orthopedics is May 14th. I'm anxious to see when he's going to operate on her ankles. She's still happy as can be!
