First Philly Trip

So we're almost wrapping up our first trip to Philadelphia.  We got in late Thursday evening after a plane delay. Flight went well but then everyone was tired so getting to the car and the hotel had most people in tears. 

Friday we went to our appt at 1130 and ended up being seen about 230. Sounds like that's kinda normal so we had lunch and played in the big play room.

Dylann pretty much hated every minute of the casting but that's been all the previous ones too. Dr Vanbosse used the hard casts instead of the soft ones were used to so she weighs like 10 pounds more now lol. After casts we just walked around downtown Philly for awhile and visited Reading market and LOVE park. Then we got caught in a rainstorm so headed home. 

Yesterday we drive out to see our friends the Prices and their new house. I'm partial to the one that was across the street from us but it was nice ;). We then went with them to Hershey chocolate world! It was a cute town and fun thing to do! Kids loved the ride that taught us how the make chocolate then grandma bought then a bear and some chocolate.

Today we went to Diggerland USA so Micah could drive a backhoe. He was pretty pumped. Now Micah and grandma are swimming at the hotel while dyl and I relax before another appt tomorrow.

Dylann's having a harder time with her casts then usual.  She hasn't slept more then 2-3 hours straight without waking up crying. She's pretty upset. Grandma has done a lot of the night duty so we could keep Micah asleep as much as possible. I'm sure our hotel neighbors haven't gotten much sleep either.   It's really hard to see your kid in pain and not be able to do anything about it... And there's not really an end in sight. She will be in 5 more casts until her surgery then her spica. I talked to the doctor a lot about the hip plans. He said his outcomes are much higher then what I was told in Minnesota .. Good news. He told me cause he's trying to correct her feet and knees a bit too she will need the full body spica instead of the 1.5 I was hoping for. She will look like the picture below for 12 weeks starting 11/18 but likely in more of a frog pose with bent knees... Bad news.

Sigh. After seeing her cry most of the last 3 days it makes you stop and think if it's really all worth it. I was thinking last night that we are 2 days into 124 days in casts.  I feel like we need to do what we can to give her the best chance at walking and getting her joints in the right position... But I hope that's the right decision. Maybe the pain trade off isn't worth it. I'm not sure if she will sleep fully normal again until February. She cried so hard today cause she couldn't go swimming with Micah. Just breaks your heart. 

Cast change tomorrow then maybe a little more sightseeing and home on Tuesday. Have a good week everyone!