Dylann 5 days old

Dylann 5 days old

Thursday, March 19, 2015

We're buying shoes!!! :)

Braces are in!!

Dylann got her casts off today. Her feet got stretched back to a neutral position and looked great. She was not a super fan of the nurses today though. They'd look at her and she start crying.

She then had her physical for her surgery in two weeks. She will be having her band markings on her calf fixed on the skin. It should be day surgery.

Then we went and got her new braces!! No more boots and bar. These things are so amazing that she can wear shoes over them! I get to buy my daughter shoes.. for the first time ever! I can't even tell you how excited that makes me. 

Dylann also got weighed and measured today and gained over a half pound and an inch in a month! This is also huge in our world lol.

That's all for now. We are driving to Hutchinson for a recipient dinner for the jam the gym event the 28th where Dylann is one of the kids receiving money towards medical expenses. If anyone's around next Saturday night, come on out to glencoe!

Friday, March 6, 2015

More casts...

Dylann went to Shriners yesterday. They made her homemade AFOs for the day and night that will help her weight bearing but also keep her ankles rotated at night. They didn't like her tightness from being out of the bar so she's back in casts for two weeks. She was not pleased apparently with that turn of events.  She also gets a little walker her PT wanted for us to work on strengthening her legs.  She says ...HELLO..




Tuesday, March 3, 2015

March updates

The first week Dylann had her boots and bar she cried and screamed all night. Since her left hip is dislocated it was very uncomfortable for her to externally rotate her leg and it was pushing her leg our versus turning it. So we took the bar off and just left the boots on to keep the heel cord length. 

I emailed our Philly doctor and he sent me some pictures of other options for new braces and copied our local doctor. So she's getting those bar-less ones on Thursday. Hopping this will help with some weight bearing in therapy as they're higher on her leg.

April will also be Dylann's third surgery. Her plastic surgeon wants to go correct her deep amniotic band marking on her calf so it doesn't cause regression on her clubfeet or start to restrict blood vessels. While this one should hurt less she will be under anesthesia three times as long.

Lastly we just had Dylann's 15 month visit last week. She's made it back on the  growth chart for height!!! Yahoo. She however didn't gain a thing in 4 months causing her to fall off the charts from 20% at the last visit. While it could certainly be a result of a crappy three months for her with two hospitalizations, a surgery, and a few viruses, were testing her for celiac based on a few symptoms she's had in addition to the growth slowing. We should no more next month. 

March will be busy with Micah and I going to Canada Thursday for 5 days and then Micah turning 5 :( and Dylann's event 3/28 where she is a recipient of a grant from the Tim orth foundation to help cover some of her medical costs. 

Have a great month!