Just finishing up our 9th trip to Philly in just over two years. Things are going better than expected. Friday was the start of Dylanns 8 ponseti casts to get her feet back in better position. We do two casts here then home to MN for three weeks/ 4 casts at Mpls Shriners the back out here10/26 for two more and surgery.
Here are some pics before casting on Friday morning. She loves the Ronald McDonald House!
We had our appt early Friday and things were running on time! She was a complete angel 😇 during casts, just laying and watching tv. The dr and I talked about her surgery a bit. We've been debating about flying or driving home and he helped with questions around that. He talked again about how her shins are twisted on both sides. Her ankle bones are on front and back versus the sides. He may decide to untwist these during surgery next month depending how much her feet correct during this casting. We talked about the knee plans and that both knees should fully straighten 6-24 months after the surgery. They may lose a little of the bend ability as the arc of motion stays the same, it just realigns. I didn't realize this but Dylann actually has a good amount of motion in both knees, one just doesn't straighten. So this will help her work towards walking independently without braces and hopefully won't lose too much bend as the trade off. She will need a lot of rehab post cast. I learned the time after the cast from surgery is worse than the time in it.
Here's a few pics from day one.
First night sleep was pretty restless, mostly cause Dylann is a belly sleeper and was getting frustrated that she couldn't roll around as much. She slept all night though so way better than expected!
Saturday we went to the Camden Aquarium and to the mall to have some fun. Dylann made friends at the RMH.
Sunday we went to a park and ate at WAhlburgers and played with our new friend Owen at the house. Sleeping continued to be rough as nights went on for Dyl. She's mostly complaining about her left knee and medicine doesn't seem to help.
Monday we had our second appointment. It was a long day with a three hour wait until our casting. Dylann had a very sore knee so was pretty tearful during casting this evening. Will see how tonight sleeping goes. Tomorrow we get up early and head back to MN for three weeks then back here for two. She went for two toned tonight!
This girl is so amazing!
