Dylann 5 days old

Dylann 5 days old

Friday, April 28, 2017

Philly trip #8

Just finished up our appointment at Shriner's yesterday. I can't believe this is our 8th time coming here already. Each time we come feels like we never left.

We got in Thursday evening and grandma came along to keep us company. We got into the Ronald McDonald House which is always so relieving to be close to the hospital and be somewhere that Dylann loves. We also happened to arrive on the grand opening of the new playroom so she was beyond excited.


AND.. they dressed her like a super hero 


Our appointment was Friday morning and we were actually in and out pretty quickly. She had an X-ray, then met with the MD, then lots of fixes to her braces, then last check with the MD. She did great and didnt fuss once. 

Not much new to report. As expected, in 5- 6 months she will have her next and hopefully last major surgery. She needs one hip osteotomy to help her socket have more of a round shape, a plate removed from her left femur from last surgery, a growth plate surgery on her right knee to gain more extension, and both feet need club feet support so will have heel cord releases. She will need 6 weeks of casting before the surgery. So we will be spending a fair bit of time out here this Fall/Winter. I asked about recovery for someone who's already come so far and he said they do bounce back much quicker. He had her do some walking and said she'll be fully walking in no time! ❤️❤️❤️❤️


Then we came back to the RMH and played in the beautiful 80 and sunny day.


We also met some new friends! I finally met another family from MN who we knew through FB but had never met in person. We also met a few other families with AMC, one of which Dylann really really liked. It was a little 5 year old named Owen from Ohio who had the same walker as her so they played together most of the stay. She kept calling him her best friend :).

We're staying till Sunday actually so this morning we're heading to a hotel close to downtown and the airport and plan to hit up the NFL draft 🏉, enjoy the weather, and go swimming. Overall a nice trip!