Gilettes visit 12/23

Not a lot of positive news today. Dylann had a hip ultrasound to see if they were affected. Her right one was in socket but the left one was not. Our doctor said typically they treat hip dysplasia with a harness the child wears for a number if weeks until the socket is realigned and growing properly. However he said for kids with arthrogryposis and the placement of her legs that it wouldn't work for her anyways. The only option is for her to have surgery between ages 6 to 12 months to place it in the socket. He said this is successful 75% of the time. The other 25% of the time it becomes dislocated again and could negatively affect the blood supply in the joint causing some of the connective tissue to die out. This would result in permanent damage and needing to wear a body length brace from there on out. He said in a few months we will have to have a discussion about these risks and if it's worth it once she shows us more how she will try to move. 

She also is no longer showing progress in her ankles so we are no longer doing the casts. She has braces that she will wear full time for a few months to keep the progress she has made and then will need surgery. If we decide to do the hip surgery then he will do the ankles at the same time to avoid multiple major surgeries for her. Even if we do all this, our orthopedic doesn't seem to feel to strongly that she will be able to walk someday. We don't come back now for a month. I think I might get a second opinion in the meantime. I have a hard time following this doctor and just want to be sure of all our options.