.to our 3-4 month journey. Overall things have gone well since we got home Tuesday. Wednesday morning we had an IEP meeting and then she was able to join her friends back at preschool!
Thursday daddy took her down to get her casts changed. Sounds like this was not a good experience for anyone. She's terrified now of the saw to remove the casts. The Mpls Shriners MD had to take a break to let her calm as nothing was helping. They ended up having the social worker come and play with her to keep her distracted. This ended up working and once the casts came off she was her normal perky self. I love the colors she picked... blue puppy paws. Her feet are looking good after 3 casts.
Today she went and saw her favorite Angel for her CST appointment. This always makes her in a better space and can't believe we've been seeming Angel since Dyl was 5 days old! We drive to Lindstrom now to keep things going!
Dylann is sleeping better and complaining of her knee less. Her temperament is so amazing! She spent some time today taking selfies with her grandma and grandpa.
Finalized next trip plans so things are falling into place. Delta continues to provide top notch customer service for our needs. Got discounted fares with medical waivers to change anything we need last minute. Plus we now get the TMA Care program that individually helps those with disabilities get through check points so no more stress around that. Got a car booked then got connected with a manager who is giving us a Shriners discount and lots of free upgrades and perks. Finalized with a DME company today for her rental reclining wheelchair that will be here in time to bring with us there. So, today, felt like things were coming together. The last three days have felt like 30 though so this momma plans to sleep 😴 til noon tomorrow...
No comments:
Post a Comment