Dylann 5 days old

Dylann 5 days old

Friday, October 28, 2016

Philly trip #7

Just wrapping up the day after seeing our MD. We had the early appointments which was nice so we actually got out of there at 230 today.  

Got her new braces at 830, then X-ray, then waited for her appointment until about 11. Played a little tea party while we waited.

She got a new "buddy" from the X-ray tech.

She got some new pink braces! She must have really liked pink in June when we ordered these 😜.


The appointment was hard. Dylanns got more work to do. 😞  Her feet are still regressing but not too fast. He's hoping to keep the next casts until a year from now.  Her knees are the same, same plan. In a year she'll have her knee surgery where he will stop the growth plates so it can straighten out, then remove them. Her hip was disappointing. It is in and it is growing and progressing...but, the socket is not shaped like it should be by now to keep it in. He wants to do another surgery in a year to curve the socket then into a 6 week Petrie cast like below.😬. He's going to think more about timing but potentially it could mean an all day surgery of hip, both knees, and femur plate removal or splitting these into two so this cast x2- once for hip and once for knees. 


I'm at the point I might just move out here.  He's talking more stuff he wants to do after "a few years down the line." I was hoping we'd graduate when she was 5 😂. Not so much.

Anyways, just trying to digest it all. Dylanns exhausted and passed out at 739...so I'm going to read a bit.. The new Jodi Picoult book is out !! 😍 

Think of and pray for this little one.


 

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