Dylann 5 days old

Dylann 5 days old

Wednesday, October 5, 2016

October updates

Hey all!

Not too much to update this month so far. We do go back to Philly in three weeks so I'll update more progress then.

We've been working hard to get Dylann walking in her walker more then also being able to get up in her tall braces. She starts preschool on 11/15 so we want her to be as independent as possible. Can you believe she's three in a month!?! A preschooler, wow!  We get to see her room Friday to prepare.

I also decided 6 months ago to see if we could get more services and help through the county. I had been avoiding it for a few reasons: 1) I kept being told she wasn't "disabled enough" by other moms, 2) it's a lot of work and energy that I wasn't sure I had in me to end up getting denied, and 3) there's something that feels final about getting a determination that states you are certified disabled that I wasn't sure I wanted to do.  Our pediatrician encouraged us to do it in March. He said he was surprised I hadn't thought about it sooner and that he'd like to see us get some help. Lol I must have looked defeated or tires that day :)!  Well after 6 months of paperwork and advocating and paperwork and waiting and paperwork, the MN state medical review board did determine she met their guidelines for disability.
So, will see what else we can get to help Miss Dylann keep progressing and keep being awesome!

I'll post more after Philly! 

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