We are also scheduled for a consult at Shriners on the 14th for their orthopedic recommendations. I called U of MN Amplatz and Mayo and they said with the rarity of her diagnosis they didn't feel they could do a good assessment. Both recommended Gilettes or Shriners.
Dylann 5 days old
Friday, January 3, 2014
Genetic testing
Our genetic doctor just called which I have to say scared the crap out of me since she made the call herself. BUT she said our testing came back and Dylann does not have myotonic muscular dystrophy! That's the only progressive thing she was just slightly worried about so was the only thing she tested at this point.
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