It's safe to say at this point that Dylann and I are really good at travelling to Philadelphia. Most of what I had wanted done prior to getting prepared was done, so that always helps. The only main hiccup was getting her rental reclining wheelchair. They told me the week before we left that I wouldn't get it on time after a number of mishaps on their end. I decided to try to find another way and borrowed some options from neighbors of mine. They ended up calling me a few days before I left and said they were going to deliver it that day or the next day and were going to call me back with the time. A few hours later my neighbor was calling me as she attempted to go sign for it and they wouldn't let her and they hadn't called me back with the time so I was still in at work a half hour away. I raced home to find out that somehow our DME company had ordered us an entire medical set up - bed that could raise her feet and/or head, a lift to get her out of bed as well as up and down stairs, a bathroom set up and the wrong size wheelchair. So that all got sent back and was a giant waste of my time. They aren't the most organized place I have worked with.
Anyways, we were able to use what we had for now and can make adjustments later if needed. My aunt and uncle brought us to the airport Thursday. We had a pretty easy flight and Dylann did great.
The car rental went flawless and we decided, for the first time, to use Thrifty and the Shriners contact to help coordinate it. I ended up getting $100 off, an upgrade to an SUV for free, and a free car seat for the time. We got in the Ronald McDonald House which is always such a blessing for the amount of stress being there is alleviated. Dylann as usual was spoiled when we got here last night with toys and volunteers playing with her!
Casting went fairly well. She now is very upset with the saw sound so that's a pretty rough 15 minutes for her to get them off. Her new doll kept her happy and she picked new colors! Sounds like her surgery will be about 6-7 hours next Wednesday.
After casting we ran lots of errands to bank, post office, and grocery store. When we got back to the Ronald McDonald house house just a bit ago we met a new friend who sees our MD. He was in the cast that Dylanns going to be in next week so we went over to chat. He actually had surgery two days ago and is already discharged so that initially made me feel relieved. Well the more I talked to Mom it sounds like it's been kind of horrible. He's still in a ton of pain and begging to go get the cast off 😩. So now I'm nervous again. They are from Singapore and staying here for the month he's in it. Poor kiddo did not look happy.
So now Dyl is resting then wants to play with her buddy who we found out is coming today. We plan to do some Halloween events this weekend and relax. Weather is beautiful at 70 and sunny!
Also, lots of people have been asking where they can send Dyl a card so I'll just post our address on here as well. Our plan right now is to head back Monday 11/6.
Phila Ronald McDonald house
ATTN Dylann paradeis
100 East Erie Street Room 204
Philadelphia, PA 19134
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