March updates

The first week Dylann had her boots and bar she cried and screamed all night. Since her left hip is dislocated it was very uncomfortable for her to externally rotate her leg and it was pushing her leg our versus turning it. So we took the bar off and just left the boots on to keep the heel cord length. 

I emailed our Philly doctor and he sent me some pictures of other options for new braces and copied our local doctor. So she's getting those bar-less ones on Thursday. Hopping this will help with some weight bearing in therapy as they're higher on her leg.

April will also be Dylann's third surgery. Her plastic surgeon wants to go correct her deep amniotic band marking on her calf so it doesn't cause regression on her clubfeet or start to restrict blood vessels. While this one should hurt less she will be under anesthesia three times as long.

Lastly we just had Dylann's 15 month visit last week. She's made it back on the  growth chart for height!!! Yahoo. She however didn't gain a thing in 4 months causing her to fall off the charts from 20% at the last visit. While it could certainly be a result of a crappy three months for her with two hospitalizations, a surgery, and a few viruses, were testing her for celiac based on a few symptoms she's had in addition to the growth slowing. We should no more next month. 

March will be busy with Micah and I going to Canada Thursday for 5 days and then Micah turning 5 :( and Dylann's event 3/28 where she is a recipient of a grant from the Tim orth foundation to help cover some of her medical costs. 

Have a great month!