February updates

Not too much has been going on lately. Dylann continues to go to weekly craniosacral therapy and we continue to see little improvements. We just finished our assessment with the birth to 3 program and Dylann will be starting physical and occupational therapy with the school district twice a month.  We also meet with gilettes rehab MD soon to see what else might be recommended.

Dylann had an appointment today with her orthopedic doctor at gilettes today. He took an X-ray of her hips and the left one was still out. He thought her knee range of motion had improved some. Her ankles looked the same, not better, not worse, so he said she can be done with her braces now. He said he wanted to keep waiting to see what she decides to do with her motor skills so he wants us to wait until she's 6 months to check back. He said if she wants to start ambulating and is pulling herself up etc then he would be more eager to do her hip surgery and ankle surgery sooner. Otherwise he's in no hurry I guess. 

So her legs will get some freedom from all the restrictions she's had since two weeks old and we will take a 3 month break. We see the neurology specialist Friday who specializes in arthrogryposis to see if we are missing anything.